Dear Readers,The point of this post isn't to stretch my writing abilities, or to expose my husband at his most vulnerable, though I think you'll agree that he's incredibly brave to let this post go live. In fact, he had to encourage me. Once, I had to pause for a few days. I told him, … Continue reading Tickets to the Famous Psychologist Phyllis Maner LIVE Event “How to Break a Heart in 3 Easy Steps” for Only $39.95!

Evan just tested negative for COVID on the tenth day! We're extra careful and don't subscribe to the new CDC five-day rule. He took an extra test on the eleventh day just to be sure it wasn't a false negative, and of course it wasn't, so he's out of the woods. So am I because … Continue reading Out of the Woods?

When I was a teenager, I read this book about a girl growing up during the Civil War called "When Will This Cruel War Be Over?" Twenty years later, that phrase keeps going through my head about COVID. It has to end at some point, right? We can't catch Omicron or worse, the deadly Delta … Continue reading When Will This Cruel War Be Over?

My Grandpa Stan, who spent the last 20 years of his life convinced he was dying, always said, "If you don't have your health, you don't have anything." However, my Grandpa Stan was wrong. Take it from me, someone who has lost nearly everything in terms of health. I am unable to move except for … Continue reading As My Granddaddy Used to Say…

I used to love the holidays. My favorite part was finding or making the perfect gift to give each person I love. My best year, I wrote mushy poetry for Evan; found the perfect mystery novel for my dad; learned how to make a dream catcher for my sister, who was having trouble sleeping; sewed … Continue reading How ALS Taught Me to Hate the Holidays

This was actually the first of three times Evan saved my life over the course of a single year. Read on to find out how my husband became my hero. #1 My oxygen has dropped to 82, but I can't find it in myself to care. In fact, I don't care if I live or … Continue reading The Time My Husband Saved My Life

"There is no pain... I have become comfortably numb." - Pink Floyd "It will work because it has to. It will work because it has to. It will work because it has to." I chant this over and over in my head until my body seizes up again. Then I pray to everyone who  might … Continue reading Comfortably Numb

Full disclosure: my therapist came up with this idea, but it's brilliant, so I'm stealing it. Don't worry, I'm a thief with morals. I will give him credit along the way. The beginning of COVID was so chaotic, it's hard to say what came first. Was it the rush on hand sanitizer and toilet paper, … Continue reading The Pandemic is a Taste of ALS

Thank you to my donors! A special thanks to my anonymous donors since we can't send them a thank you note. So far, we've raised about $11,000, bringing our Help Hope Live total up to over $14,000! We found a brilliant nurse who knows practically everything about ventilators, and Evan is getting the respite he … Continue reading Thank You!

I have some good health news. I may not be incontinent after all. I mentioned the issues I have been having to my primary care, and she said based on the consistency, it seems like a dietary problem. Maybe not enough fiber. She's connecting me with a nutritionist soon. I am trying not to get … Continue reading Health Update: Good News!