ALS is a brutal enemy. The cause of ALS remains a mystery. Family history is only relevant in about 10% of cases and there’s no apparent link to lifestyle. This an equal opportunity killer that destroys the nerves that allow its victims to move, speak, eat, and eventually breathe. It is terminal and has no cure. I am hopeful, though. I don’t believe this is how my story ends. This disease isn’t incurable. It’s just seriously underfunded. However, scientists are slowly figuring it out.

Over the course of six years (2017 – 2023) three new drugs to treat ALS have been approved by the FDA! First came Radicava, then Relyvrio*, and just 8 months later came Qalsody for pALS (people living with ALS) who carry the SOD1 gene mutation. I’m excited to see what comes next!

To learn more about ALS…

• Watch this video created by I AM ALS.
• Read what the Mayo Clinic has to say.
• Check out this explanation from the ALS Association.

*If you’re seeking Relyvrio and having trouble, consider contacting Amylyx Care Team (ACT). They will follow your case closely and may even be able appeal your case.