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How I Live Now: Life With ALS

picking up the pieces, building a new normal, and choosing hope over fear

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June 19, 2016June 20, 2016

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Posted in: Care, Grief, Identity, Medical Equipment, Silence, Voice

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The Luckiest (Wo)Man: Ales for ALS 

About Me

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My name is Rachel. When I was diagnosed with ALS at age 28, I lost my teaching career, my plans to travel, and the chance to start a family with my husband. I lost my future. I almost lost hope, but being surrounded by so many people unwilling to let me go helped me step back from the edge. Now I am determined not to let a day go by without fighting for my life. Follow me to learn about ALS and join the fight to defeat it!

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