3 2 3 2 At my most recent clinic, the nurse pulled out my mic-key - the feeding tube that allows access to my stomach - so they could give me a fresh one, and all of my breakfast came out like a volcano. Before the nurses could even react, Evan dove in and covered … Continue reading Gross True Love
3 3 3 3 2 This one goes out to all the people who can't cry at home. Whether you are trying to be brave for a loved one or just don't have the space or privacy to cry at home, I hope this gives you some relief. Step 1: Park your car somewhere safe, … Continue reading The Art of Car Crying
It's time to celebrate what your donations accomplished in 2017! Let's keep up the fundraising and advocating so that 2018 will take us even closer to a cure. ALS doesn't quit. Neither can we!
2 3 I have never really been one to get excited about New Years. Early on, my mom instilled in me a lasting fear of the hordes of drunk drivers careening about all night. I am now 30 years old, and to this day, I have never been to a New Years Eve party I … Continue reading Draw on the Magic of New Years to Improve Your Health (Even if You Have ALS)
2 What you have to understand about the way I love Evan is this: I am desperate for him. I can't shut up about him, and I don't want to. I have heard people say that the sign of a strong relationship is that there is no sign of it on social media because the … Continue reading The man I kiss at midnight
3 3 Depression is a sneaky beast. It’s the monster beneath the bed, waiting until you’re vulnerable to grab you by the ankles, drag you into its dark, misty kingdom and leave you to wander alone. I’m just stumbling out of a two month-long bout of depression. I knew I was at risk. In fact, … Continue reading A new approach to preventing and identifying depression
3 4 4 4 2 Trigger Warning! Forward: When just over a month ago I sensed that my mind was changing, I was overcome with a frenzied need to record everything I thought and felt. Even before I understood that I was depressed, I realized I was going somewhere that outsiders could never truly visit. … Continue reading My Depression Diary
3 2 Those of us living with ALS or loving someone who has it are gratitude experts. Don't misunderstand me. We have our dark, bitter moments. As we catalogue our blessings - the precious time we have had on earth, our remaining abilities - we inevitably think about the other side of the coin. Yes, … Continue reading 3 Things to Be Grateful for This Thanksgiving If You Have ALS
I consider this Halloween costume an absolute success. I dressed as the Little Mermaid, and had a sign on my wheelchair to tell people that ALS stole my voice! Ursula, you're off the hook. Plus, I had some royal arm candy (wink wink). I am glad I was able to dress up and pass out … Continue reading A Happy Halloween
"Relationships aren't perfectly symmetrical and that's okay." - Melissa Rothstein After my diagnosis, I learned that no matter how long someone has been in your life, ALS causes such dramatic change that you will have to lay a new foundation for your relationships. When I felt my relationships fracturing under the strain of my mysterious … Continue reading 5 Ways to Build a Relationship Stronger Than ALS
How I Live Now: Life With ALS 