2 Every time I go to a doctor appointment - my main reason for getting out of bed and into my uncomfortable wheelchair - I blink at the brightness of day. The blue summer sky is blinding, and it always takes a minute to adjust. Once my eyes accept the sunshine, I immediately wonder how … Continue reading “And I Think to Myself, What a Wonderful World!”
2 It can be hard to "live my truth." Just because I have had a revelation or realization does not mean I can instantly incorporate it into my lifestyle. Especially because my hope just got a kick in the teeth. The latest bump in my pump did not work. This means more time on oral … Continue reading On the Other Hand
Evan has been urging me to write since April, especially about the surgery and unexpected results. You have all been so supportive this past year during chronic spasms that left me housebound and eventually bedridden. You are what kept my spirits up. Then, I took all that love, rolled into the Operating Room with me... … Continue reading Finding my Sunshine
2 Mighty Mind Strategies for Managing Pain Over the past year, I have become an expert in pain, something I never wanted to be. However, daily severe muscle spasms, cramping, one surgery, and an Emergency Room visit later, here I am. Despite my plethora of pain medication, I still suffered. Then, I realized that … Continue reading My Pain Management Strategies
2 I have become a tobii wizard. It's true. Once upon a time, it took me fifteen minutes to type one paragraph. Now, I glide across apps, carrying and adding to my content, dipping into shortcuts to rearrange my words into uniquely crafted messages that sound authentic to yours truly - all at a … Continue reading For the Love of Dog
Warmth tempts my berry tipped toes to the opening of my den. I crouch by new grass blades sharp with the bitter scent of promise. I am spring born. What was my life before this long darkness? Before this crescent edge of sun? Do the trees stand exactly as they used to, … Continue reading Spring Born
3 2 This news is both moving and a profound reason for hope! When I was diagnosed three years ago, voice banking would have taken eight hours, and I simply didn't have the strength - or money - for such an endeavor. As you will see in the video,141136 this company was able to recreate … Continue reading Getting Back My Voice?
This beautiful writer hits on one of the greatest points of pain for people with ALS. We're all wondering why this mysterious disease with no known cause or cure chose us. Every day, I think, "Why me?" Read on to learn the exact reason I write and how sharing your own story can improve your … Continue reading Thought Point: On Finding Meaning through Chronic Illness
3 I haven't written a lot about the problem that has rendered me bedbound for quite a few months now. You may think you understand the severity of the situation. However, what you know is the tip of an iceberg that you soon discover is actually the edge of a glacier that is moving inevitably … Continue reading The Sun’ll Come Out April 19th
How I Live Now: Life With ALS 