This is not the Thanksgiving piece I intended to write, but this year I'm grateful and lucky simply to be alive. I've been hospitalized 3 times this fall. The first time I had double pneumonia. My lungs were a total white out when I was admitted. Lungs are supposed to be black on an x-ray, … Continue reading Back to Basics: What I’m Grateful for This Thanksgiving
Tag: love
On My Husband’s 37th Birthday
"Nothing prepared me for the privilege of being yours." - Sleeping at Last, "Turning Page"2 What you have to understand about the way I love Evan is that I am desperate for him. I can't shut up about him, and I don't want to. People say that the sign of a strong relationship is that … Continue reading On My Husband’s 37th Birthday
The 4th of July – ALS Style!
This is a photo I took on our cross-country road trip just before we crossed the Mississippi River. Ever since we adopted dogs, I haven't been a fan of fireworks. They terrified Malka, our dog who passed away on September 26th, which was surprising because she was a fierce protector. She used to huddle with … Continue reading The 4th of July – ALS Style!
Gross True Love
3 2 3 2 At my most recent clinic, the nurse pulled out my mic-key - the feeding tube that allows access to my stomach - so they could give me a fresh one, and all of my breakfast came out like a volcano. Before the nurses could even react, Evan dove in and covered … Continue reading Gross True Love
The man I kiss at midnight
2 What you have to understand about the way I love Evan is this: I am desperate for him. I can't shut up about him, and I don't want to. I have heard people say that the sign of a strong relationship is that there is no sign of it on social media because the … Continue reading The man I kiss at midnight
How I Live Now: Life With ALS 