This is not the Thanksgiving piece I intended to write, but this year I'm grateful and lucky simply to be alive. I've been hospitalized 3 times this fall. The first time I had double pneumonia. My lungs were a total white out when I was admitted. Lungs are supposed to be black on an x-ray, … Continue reading Back to Basics: What I’m Grateful for This Thanksgiving
Tag: Holidays
The 4th of July – ALS Style!
This is a photo I took on our cross-country road trip just before we crossed the Mississippi River. Ever since we adopted dogs, I haven't been a fan of fireworks. They terrified Malka, our dog who passed away on September 26th, which was surprising because she was a fierce protector. She used to huddle with … Continue reading The 4th of July – ALS Style!
Gross True Love
3 2 3 2 At my most recent clinic, the nurse pulled out my mic-key - the feeding tube that allows access to my stomach - so they could give me a fresh one, and all of my breakfast came out like a volcano. Before the nurses could even react, Evan dove in and covered … Continue reading Gross True Love
Draw on the Magic of New Years to Improve Your Health (Even if You Have ALS)
2 3 I have never really been one to get excited about New Years. Early on, my mom instilled in me a lasting fear of the hordes of drunk drivers careening about all night. I am now 30 years old, and to this day, I have never been to a New Years Eve party I … Continue reading Draw on the Magic of New Years to Improve Your Health (Even if You Have ALS)
The man I kiss at midnight
2 What you have to understand about the way I love Evan is this: I am desperate for him. I can't shut up about him, and I don't want to. I have heard people say that the sign of a strong relationship is that there is no sign of it on social media because the … Continue reading The man I kiss at midnight
3 Things to Be Grateful for This Thanksgiving If You Have ALS
3 2 Those of us living with ALS or loving someone who has it are gratitude experts. Don't misunderstand me. We have our dark, bitter moments. As we catalogue our blessings - the precious time we have had on earth, our remaining abilities - we inevitably think about the other side of the coin. Yes, … Continue reading 3 Things to Be Grateful for This Thanksgiving If You Have ALS
How I Live Now: Life With ALS 