This is not the Thanksgiving piece I intended to write, but this year I'm grateful and lucky simply to be alive. I've been hospitalized 3 times this fall. The first time I had double pneumonia. My lungs were a total white out when I was admitted. Lungs are supposed to be black on an x-ray, … Continue reading Back to Basics: What I’m Grateful for This Thanksgiving
Category: Gratitude
“And I Think to Myself, What a Wonderful World!”
2 Every time I go to a doctor appointment - my main reason for getting out of bed and into my uncomfortable wheelchair - I blink at the brightness of day. The blue summer sky is blinding, and it always takes a minute to adjust. Once my eyes accept the sunshine, I immediately wonder how … Continue reading “And I Think to Myself, What a Wonderful World!”
On the Other Hand
2 It can be hard to "live my truth." Just because I have had a revelation or realization does not mean I can instantly incorporate it into my lifestyle. Especially because my hope just got a kick in the teeth. The latest bump in my pump did not work. This means more time on oral … Continue reading On the Other Hand
For the Love of Dog
2 I have become a tobii wizard. It's true. Once upon a time, it took me fifteen minutes to type one paragraph. Now, I glide across apps, carrying and adding to my content, dipping into shortcuts to rearrange my words into uniquely crafted messages that sound authentic to yours truly - all at a … Continue reading For the Love of Dog
The Sun’ll Come Out April 19th
3 I haven't written a lot about the problem that has rendered me bedbound for quite a few months now. You may think you understand the severity of the situation. However, what you know is the tip of an iceberg that you soon discover is actually the edge of a glacier that is moving inevitably … Continue reading The Sun’ll Come Out April 19th
Gross True Love
3 2 3 2 At my most recent clinic, the nurse pulled out my mic-key - the feeding tube that allows access to my stomach - so they could give me a fresh one, and all of my breakfast came out like a volcano. Before the nurses could even react, Evan dove in and covered … Continue reading Gross True Love
The man I kiss at midnight
2 What you have to understand about the way I love Evan is this: I am desperate for him. I can't shut up about him, and I don't want to. I have heard people say that the sign of a strong relationship is that there is no sign of it on social media because the … Continue reading The man I kiss at midnight
3 Things to Be Grateful for This Thanksgiving If You Have ALS
3 2 Those of us living with ALS or loving someone who has it are gratitude experts. Don't misunderstand me. We have our dark, bitter moments. As we catalogue our blessings - the precious time we have had on earth, our remaining abilities - we inevitably think about the other side of the coin. Yes, … Continue reading 3 Things to Be Grateful for This Thanksgiving If You Have ALS
How I Live Now: Life With ALS 