Contact Your Representatives to Save the National ALS Registry!




The National ALS Registry is in danger of being defunded! Use the following text to write to or call your representatives and let them know that you expect them to oppose this atrocious proposal (contact information here148).

The Honorable [NAME]
United States House of Representatives (or: United States Senate)
United States Capitol
Washington, DC

Dear Representative (or: Senator) [NAME]:

I am writing to ask your help to ensure that federal funding is preserved to help people with Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s Disease. If fully enacted, the recent budget proposed by the president will seriously impact the lives of people suffering from ALS and their families. In fact, it may even be a death sentence. According to a joint statement from The ALS Association, the Muscular Dystrophy Association and the Les Turner ALS Foundation, “The Administration’s budget proposal, if enacted, would eliminate the opportunity for people living with ALS to directly connect with a wide range of clinical trials and epidemiological studies.”

Specifically, the president’s budget calls for complete defunding of the National ALS Registry, one of the greatest sources of finding a cure. This is a matter of life and death, not politics. This budget proposal is not only mean spirited and hurtful; it will also dramatically roll back the progress that had been made in the past few years to find a cure.

I know there are a number of serious budget issues under review. However, I think, and I hope you do as well, that those that directly impact the lives of our citizens should be preserved and fully funded. (Optional: Insert personal story of the impact of ALS on your life).

As a resident of (STATE), I hope that I can count on your support and look forward to watching closely as the president’s budget moves through the legislative process.

(Optional) If you need more information on the impact of ALS on the people in our state, please don’t hesitate to contact the ALS Association of (STATE ORGANIZATION) at: (insert chapter website).


Your Name

5 thoughts on “Contact Your Representatives to Save the National ALS Registry!

  1. Joyce davidson says:

    Do not get rid of the ALS registry ! Until you have seen the horror of this disease you cannot fully understand. If anything we need more funding to eradicate this terrible disease.


  2. Eileen Frey says:

    Do NOT abolish the ALS registry or cut funding for research!
    My cousin died from ALS. Another cousin’s wife does research in this field in an attempt to help people survive what killed her father.


  3. Cheryl Jones says:

    Please don’t throw people with ALS away. They are people with feelings just like us all. They need love like we all do. They are just like all human beings and because they have bodies that are being ravished by a horrible disease does not mean they are to be put out and discarded like trash. They have family that love them.


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