Only two more days until my Tobii Dynavox comes. I cannot wrap my head around this. I’m getting back the ability to text and talk on the phone. I will be able to write emails and blog posts at a more normal pace (right now, my fingers are a total mess, so I type like a snail).
Change is in the air, a wind is in the door. My voice is slipping away, and technology to replace it is stepping in. The arrival of my Tobii Dynavox will be an emotional time; I’m scared I will cry.
3 thoughts on “A Wind in the Door”
Hi, my name is Karen Gallimore I was diagnosed with PLS (Primary Lateral Sclerosis) which is the very rare slower version of ALS in 2012 at the age 56. I totally understand what you are going through I too get scared , worry, can’t sleep the night before I see my doctor( Terry Heiman Patterson at Drexel medical University every 3 months. As for talking I still have my voice but at times recently I have had trouble saying easy and simple words and it scares that I might be slowly losing the use of my voice. You very welcome to email me anytime to share stories about our visits to the doctor’s, medications, feelings emotions etc. Your in my thoughts and prayers .
Your Tobii will be amazing but the learning curve is tough. You can do it!
Thanks, Justin! I know I will ultimately love it. It makes the future much less frightening!