Tag: Thanksgiving

Back to Basics: What I’m Grateful for This Thanksgiving

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This is not the Thanksgiving piece I intended to write, but this year I’m grateful and lucky simply to be alive. I’ve been hospitalized 3 times this fall. The first time I had double pneumonia. My lungs were a total white out when I was admitted. Lungs are supposed to be black on an x-ray, but mine were completely white and filled with fluid. No matter how much oxygen they gave me, I felt like I was suffocating.

The second time, one of my nurses saved my life because she noticed very quickly that my secretions – what I cough up – were getting too thick and had a blood tinge. I almost died during that hospital visit when my blood pressure dropped 80 points all the way down to 46, but I’m not ready to talk about that.

The third time I was hospitalized, Evan took my BP for morning vitals, and it was 72. He kept giving me midodrine to raise my BP, but it didn’t work. I was unconscious and Evan couldn’t wake me up for more than a second to answer questions like what my name was, so he called 911. I woke up in the ER. He explained why I was there. It is disturbing not to remember. I vaguely recall getting a CT scan, but it was like a dream.

I have a 10 cm wound from the rough treatment at the hospital. Evan and I are worried because I can’t feel anything at all on the wound, not even when Evan puts cream on it, and that is a sign of nerve damage. It’s getting wider and deeper every day. It’s a Stage 3 wound that is currently 3 cm deep.

I had planned to write Evan a letter of love and gratitude for my Thanksgiving post, but I’m exhausted so this will have to suffice:

Evan teaches me how to love every day. He has been taking care of me for 8 years without a break, and he is on call 24/7. There are no words to describe and thank him for the countless sacrifices he has made to ensure he gives me the best possible care. His love and devotion are almost beyond comprehension.

“Love is patient, love is kind…
It is not self-seeking,
It is not easily angered,
It keeps no record of wrongs…
Always protects, always trusts,
Always hopes, always preserves.
Love never fails.”

1 Corinthians 13:4-8

This is perhaps the most loved section of Paul’s letter to the Corinthians. Paul was writing about Evan. He just didn’t know it.

Photo by Tima Miroshnichenko on Pexels.com

3 Things to Be Grateful for This Thanksgiving If You Have ALS

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Gratitude

Those of us living with ALS or loving someone who has it are gratitude experts. Don’t misunderstand me. We have our dark, bitter moments. As we catalogue our blessings – the precious time we have had on earth, our remaining abilities – we inevitably think about the other side of the coin. Yes, I have lived 30 full years, but how many do I have left as this disease does its wicked work? I can still move my legs, but God, do I miss walking and dancing.

This post is meant to break us and our loved ones out of this cycle. This Thanksgiving, let’s be grateful for the following:

1. The exciting research currently underway

In the three years since the Ice Bucket Challenge, we have seen more progress in research about the causes of and treatments for ALS than I ever dreamed of when I was diagnosed. Just a few months ago, the FDA – with guidance from the ALS Association – approved Radicava, the first new drug for ALS in over 20 years! To keep up with advances in research as well as drug trial news, follow these organizations on Facebook or Twitter: The ALS Association, ALS TDI, and ALS News Today.

2. We are not alone

In addition to the local monthly support groups hosted by The ALS Association, did you know that this fantastic organization arranges fun events for ALS families year round? My chapter hosts a Zoo Day and a picnic gathering at a local farm. Follow your local chapter on Facebook or Twitter so you don’t miss out! You can also get support without even leaving home by joining online support groups. I belong to six on Facebook!

3. Caregivers show us love every day

I am constantly amazed and humbled by the devotion of my caregivers. Whether they are family members, friends, or professionals we hired through an agency, they work tirelessly to see to my personal needs, from feeding me to toileting. What’s more, they do it in a way that preserves my dignity. Then, I think of all the ways they support Evan. An ALS spouse is never truly off duty, so it’s easy to get behind on housework and neglect self-care. My caregivers make such a difference in Evan’s quality of life by helping out with laundry and staying with me while Evan runs errands or takes a little time for himself. Make a list of everything that your caregivers do for you. It will give you something to do during the four hours your turkey is it the oven.

On that note, remember that November is Caregivers Appreciation Month. It’s not too late to thank your caregivers with a heartfelt note or some flowers!

 

This post is dedicated to my caregivers: Amelia, Aubrey, Brenda, Cindy, Evan, Mallori, Melissa, Paige, and Renee (AKA my mom).