by Rachel Doboga My mother taught me it's not polite to talk about money, politics, and religion outside close friends and the nuclear family, but as it's ALS Awareness Month I want to make clear the monetary cost of the monster inside me. ALS is often called "the bankruptcy disease," and with good reason. The … Continue reading The Financial Cost of ALS
2 It can be hard to "live my truth." Just because I have had a revelation or realization does not mean I can instantly incorporate it into my lifestyle. Especially because my hope just got a kick in the teeth. The latest bump in my pump did not work. This means more time on oral … Continue reading On the Other Hand
3 3 3 3 2 This one goes out to all the people who can't cry at home. Whether you are trying to be brave for a loved one or just don't have the space or privacy to cry at home, I hope this gives you some relief. Step 1: Park your car somewhere safe, … Continue reading The Art of Car Crying
2 3 I have never really been one to get excited about New Years. Early on, my mom instilled in me a lasting fear of the hordes of drunk drivers careening about all night. I am now 30 years old, and to this day, I have never been to a New Years Eve party I … Continue reading Draw on the Magic of New Years to Improve Your Health (Even if You Have ALS)
How I Live Now: Life With ALS 