My enunciation is getting rough. The letter "s" is my particular nemesis. I slur and lisp so badly, I have stopped using plural forms, and I avoid contractions. This afternoon, though, my sloppy "s" saved the day. By 4:00, it felt like everything that could go wrong had already happened. A scheduling error left me … Continue reading Wheels
Tag: Acceptance
Far From FDR
Lately, I've been worrying a lot about my identity. So much is changing at what feels like breakneck speed. My body in particular is alien to me. I swing between thinking I am an ALS research guinea pig, a robot incorporating new mechanisms to extend the life of what is clearly a junker, or, most … Continue reading Far From FDR
Reality Check
"Honey, whether or not you accept help doesn't change the fact that you need it." I received this great advice from a nurse as I struggled to accept all the new braces I need to keep my feet flat enough to bear weight. As I try to maintain my independence, I know her words … Continue reading Reality Check
How I Live Now: Life With ALS 