Hello all! I'm already impressed, touched, and overwhelmed by your stories of how your hour of silence went today. I would LOVE to share your stories of silence; it would be amazingly powerful to have them all in one place. Please consider sharing your experience below. If you are not able to spend an hour … Continue reading Don’t Talk-A-Thon: Part 2
Today is the Don't Talk-A-Thon, a fundraising event in which participants vow an hour of silence in support of those who are forever silenced by ALS. In honor of this special event, I am sharing a very personal and painful story about the first time that ALS stole my voice. Remember, for me and countless … Continue reading Don’t Talk-A-Thon: Part 1
ALS has not just changed my life. It has rocked the world of those who love me, especially my primary caregivers, my sister Laura and my husband Evan. My friend Glynis knows all about life with ALS as she cares for her husband. Read her blog, Life After ALS: A Caregiver's Journey, to get a … Continue reading Another Point of View
I have a big mouth. I wasn't always this way. Somewhere along the line, though, I learned to talk back, something I'm especially good at when sticking up for loved ones. Even though I'm in a wheelchair and my voice is fading, I just had to say something when a man catcalled my sister Laura … Continue reading Loud Mouth
Our dog Malka has always been a mama's girl, but my illness has made her much more attentive. Lately, she can even preempt when and where I am about to roll, and if I hit the "help button" on my power chair, she sprints to my side. I was about to accept her new ESP … Continue reading Someone to Watch Over Me
How I Live Now: Life With ALS 