"Relationships aren't perfectly symmetrical and that's okay." - Melissa Rothstein After my diagnosis, I learned that no matter how long someone has been in your life, ALS causes such dramatic change that you will have to lay a new foundation for your relationships. When I felt my relationships fracturing under the strain of my mysterious … Continue reading 5 Ways to Build a Relationship Stronger Than ALS
4 3 2 As I write this, I am sitting in bed, watching a funny show while checking my email, text messages, and Facebook notifications. It is the middle of the night, a time of terror for me, so I need the safety of the blue electronic light of my devices. I bask in the … Continue reading I Am Not OK
3 3 2 If you are anything like me, you do a little research before choosing a doctor. Patients can easily learn about the traditional aspects of their doctor's qualifications, such as the college they attended, years practicing, and awards earned, with a simple Internet search. However, it's quite a bit harder to get a … Continue reading Unabridged: “Is Your Doctor Hurting Your Mental Health? Why You Need an Emotionally Intelligent Doctor and How to Find One”
To be read with "Is Your Doctor Hurting Your Mental Health? Why You Need an Emotionally Intelligent Doctor," originally published by ALS News Today, October 2, 2017 Whether or not your doctor practices emotional intelligence will make an enormous impact on the quality of your care and mental health. At best, a doctor lacking emotional … Continue reading Dr. Jeff, the Jugular, and Me
Photo by Bob Clark on Pexels.com "I have not been as others were - I have not seen as others saw... When the rest of Heaven was blue of a demon in my view." Edgar Allan Poe, "Alone" I'm so sick of ALS. It is hitting me once again that this is my life, and … Continue reading Demon in My View
How I Live Now: Life With ALS 