Lately, I've been worrying a lot about my identity. So much is changing at what feels like breakneck speed. My body in particular is alien to me. I swing between thinking I am an ALS research guinea pig, a robot incorporating new mechanisms to extend the life of what is clearly a junker, or, most … Continue reading Far From FDR
I have a big mouth. I wasn't always this way. Somewhere along the line, though, I learned to talk back, something I'm especially good at when sticking up for loved ones. Even though I'm in a wheelchair and my voice is fading, I just had to say something when a man catcalled my sister Laura … Continue reading Loud Mouth
"Honey, whether or not you accept help doesn't change the fact that you need it." I received this great advice from a nurse as I struggled to accept all the new braces I need to keep my feet flat enough to bear weight. As I try to maintain my independence, I know her words … Continue reading Reality Check
How I Live Now: Life With ALS 