Trump’s new budget proposal calls for complete defunding of the ALS Registry, which will dramatically slow the research that I and thousands of other people with ALS are counting on to save our lives! This is a matter of life and death, not politics. My survival is not a partisan issue. I beg you to call or write to your representatives to let them know that this budget is unacceptable as long as it includes a call to defund the ALS Registry, one of our greatest sources of hope for a cure.
Last week, President Trump submitted his budget request to Congress. Included in the proposal are changes to funding for Medicaid, cuts to Social Security Disability Insurance (SSDI), cuts to the National Institutes of Health (NIH) and the complete defunding of the National ALS Registry at the Centers for Disease Control (CDC). The ALS Association is very concerned that these proposals will negatively impact people affected by ALS and will slow down the progress we have made in research for treatments and a cure. We do not believe this is a partisan issue – Members of Congress on both sides of the aisle have expressed concerns about the cuts contained in the President’s budget.
View original post 324 more words